Lessons from the MoodNetwork Patient-Powered Research Network
Andrew Nierenberg, MD
Professor of Psychiatry at Harvard Medical School
Director, Bipolar Clinic and Research Program
Massachusetts General Hospital
Thursday May 24, 2017
Past Events
ADDRESSING DISPARITIES
THE WHYS AND HOWS: A PCORI PERSPECTIVE
Romana Hasnain-Wynia, MS, PHD
Chief Research Officer at Denver Health
(formerly, Director of the Addressing Disparities Program at PCORI)
Wednesday, March 1st, 2017
Qualitative Research Experts:
a resource for the BWH community
Thursday, January 26th, 2017
Michael A. Fischer, MD
Associate Physician, BWH
Tuesday, December 20th, 2016
“Working with PCORI: from proposal to review to funded project”
Eldrin F. Lewis, MD
Associate Professor of Medicine, HMS
Director, Cardiovascular Clerkship Program and STARS research program
Advanced Heart Disease Section, BWH
“Shared decision support intervention for patients and their caregivers
with Advanced Heart Failure: A Bridge to Destination”
Update on PCORI Methods
Dan Solomon, MD, MPH ,
Professor of Medicine, Division of Pharmacoepidemiology,
Department of Medicine, BWH
Sebastian Schneeweiss, MD, ScD ,
Professor of Medicine and Epidemiology, Vice Chief, Division of Pharmacoepidemiology,
Department of Medicine, BWH
Click here to watch Daniel Somolmon’s & Sebastian Schneeweiss presenation
Adil Haider, MD, MPH,
Director, Center for Surgery and Public Health, Department of Surgery,
Brigham and Women’s Hospital
“The MoodNetwork: A Unique Opportunity for Patients with Depression or Bipolar Disorder to Become Partners in Research”
Andrew Nierenberg, MD
Professor of Psychiatry, HMS,
Director,Bipolar Clinic and Research Program,
Associate Director, Depression Clinical and Research Program, Massachusetts General Hospital
Click here to watch a video of Andrew Nierenberg’s presentation
“The Affordable Care Act: An Update“
David Blumenthal, MD, MPP, President, The Commonwealth Fund
Click here to watch a video of David Blumenthal’s presentation
“Putting the ‘Human’ in Human Research: The IRB in the Age of Comparative Effectiveness Research”
Rich Platt, MD
Pearl O’Rourke, MD
Click here to watch a video of Rich Platt and Pearl O’Rourke’s presentation
“PCORI in Navajo Nation: Stakeholder Engagement to Address Health Disparities”
Sonya Shin, MD, MPH
Assistant Professor of Medicine, Harvard Medical School
Date: Monday, May 12th, 2014
“Connected Health as a Tool for Patient Engagement”
Joseph Kvedar, MD
Founder and Director of the Center for Connected Health, Partners HealthCare Associate Professor of Dermatology, Harvard Medical School
Date: Monday, April 14, 2014
“Research Opportunities and the APCD”
John Hsu, MD, MBA, MSCE
Director of the Program for Clinical Economics and Policy Analysis, Mongan Institute for Health Policy Associate Professor of Medicine, Harvard Medical School
Date: Monday, March 24, 2014
“The Boston PCORI Clinical Data Research Network: Scalable Collaborative Infrastructure for a Learning Healthcare System”
Ken Mandl, MD, MPH
Professor of Medicine, Harvard Medical School
“Architecture for a distributed Clinical Data Research Network”
Shawn Murphy, MD, PhD
Associate Professor of Neurology, Harvard Medical School
Date: February 24, 2014
Click here to watch a video of Dr. Mandl’s and Dr. Murphy’s presentations
“Getting to patient-centered high value healthcare – Is the ACA enough?”
Ashish Jha, MD, MPH
Professor of Health Policy and Management, Harvard School of Public Health
Date: Monday, January 27th
“The PCORI Methods Report and what it means for CER researchers at BWH”
Sebastian Schneeweiss, MD, ScD, SM
Professor of Medicine, Harvard Medical School
“Common Methodological Issues for CER in Big Data”
Sharon-Lise Normand, PhD, MSc
Professor of Biostatistics, Harvard Medical School
Date: Monday, December 16, 2012
“The PCORI Research Agenda and the Role of Engagement”
Anne Beal, MD, MPH
Deputy Executive Director and Chief Officer for Engagement, PCORI
Date: Monday, October 21, 2013
Workshop
Engaging Patients in the Research Process
Date: Monday, September 23, 2013
Danielle Lavallee, PhD, PharmD
Patient Voices Project Senior Manager and Lead Researcher, Surgical Outcomes Research Center (SORCE), University of Washington
Maureen Fagan, DNP, MHA
Executive Director for the BWH Center for Patients and Families
Dena Salzberg, BSN
BWH Patient and Family Adviser, PCORI Transitions Project Member
Workshop overview: The Patient-Centered Outcomes Seminar Series is sponsoring a Workshop focused on the practical “how to” of patient and stakeholder engagement for those investigators interested in pursuing patient-centered research through PCORI, AHRQ, etc. Viewing patients as partners in the research process rather than research subjects is unfamiliar to some researchers, but required within many CER/PCOR funding opportunities. The presentations within this Workshop will address patient and stakeholder engagement expectations of these funding institutions, examples of past successful patient and stakeholder engagement, strategies for effectively engaging patients and stakeholders (both generally and specifically at BWH), and the various roles that patients can play in the research process.
Agenda
2:30 pm: Opening Remarks and Introductions, Dan Solomon, MD, MPH, BWH and Joel Weissman, PhD, BWH
2:35 pm: Session 1: “Enhancing Research through Patient Engagement”, Danielle Lavallee, PhD, PharmD, University of Washington
2:50 pm: Session 2: “Successful Strategies for Incorporating Patient Advisors and Stakeholders”,Maureen Fagan, DNP, MHA, BWH and Dena Salzberg, BSN, BWH
3:15 pm: Panel Discussion
- Panel Moderators: Dan Solomon, MD, MPH, BWH and Joel Weissman, PhD, BWH
- Panelists: Danielle Lavallee, PhD, PharmD, University of Washington, Maureen Fagan, DNP, MHA, BWH, and Dena Salzberg, BSN, BWH
3:35 pm: Keynote: “Developing Patient-Centered Research”, Danielle Lavallee, PhD, PharmD University of Washington
4:20 pm: Audience Q&A
4:30 pm: Networking Reception
Keynote: Danielle Lavallee, PhD, PharmD, Chase Alliance Survey Center Senior Manager and Lead Researcher, Surgical Outcomes Research Center (SORCE), University of Washington
Featured Panelists: Maureen Fagan, DNP, MHA, Executive Director for the BWH Center for Patients and Families, and Dena Salzberg, BSN, BWH Patient and Family Adviser, PCORI Transitions Project Member
“Cluster randomizations for comparative effectiveness research”
Richard Platt, MD, MS
Professor and Chair of Population Medicine, Harvard Medical School, Physician, Brigham and Women’s Hospital
Date: Monday, June 24, 2013
“Relative patient benefits of a hospital-PCMH collaboration within an ACO to improve care transitions: Lessons learned from the PCORI grant application experience”
Jeffrey Schnipper, MD, MPH
Associate Professor of Medicine, Harvard Medical School, Physician, Brigham and Women’s Hospital
“Engaging with patients who disengage”
Jennifer Polinski, ScD, MPH, MS
Instructor in Medicine, Harvard Medical School, Epidemiologist, Brigham and Women’s Hospital
Date: Monday, May 13, 2013
Click here to view the video of Dr. Schnipper’s and Dr. Polinski’s Presentation
“Will Equity Be Achieved Through Health Care Reform?”
John Ayanian, MD, MPP
Professor of Medicine and Health Care Policy, Harvard Medical School and Physician, BWH Division of General Medicine
Date: Tuesday, April 23, 2013
“Patient-Centered Outcomes Research at the start of 2013: Promise, Confusion, Outrage, and Rationale (PCOR)”
Jerome Avorn, MD
Professor, Dept. of Medicine, Division of Pharmacoepidemiology & Pharmacoeconomics, BWH
Date: Monday, January 28, 2013
Click here to see the article in the BWH Bulletin about Dr. Avorn’s talk.
ENABLING PATIENT-CENTERED OUTCOMES RESEARCH AT BRIGHAM AND WOMEN’S HOSPITAL
Patient-centered outcomes research is a significant element of the Patient Protection & Affordable Care Act of 2010. It is focused on enabling patients and members of their health ecosystem, including care givers, clinicians, insurers and policy makers, to make the most informed health care decisions by providing them the highest quality scientific evidence on the effectiveness, benefits and risks of the different options available for prevention, treatment and care of a disease or condition.
The goals of the ‘Enabling Patient-Centered Outcomes Research at BWH’ workshop included:
- bringing together the investigators across BWH who are currently working on patient centered outcomes research (PCOR)
- showcasing examples of PCOR at BWH
- sharing information on available resources at BWH and elsewhere that are conducive to PCOR
- discussing the challenges/barriers to doing this type of research at BWH and the institutional infrastructure necessary to drive successful PCOR
- exploring the creation of a patient-centered outcomes research center at the BWH Biomedical Research Institute in order to bring together all of the BWH researchers working on PCOR under a single umbrella thus ensuring maximum value for our patients and other important stakeholders
- collectively considering how to position BWH researchers for the current and anticipated funding opportunities through PCORI
“Strategic approaches to embracing patient-centered care and outcomes in the context of constricted resources”
Gary Gottlieb, MD, MBA
Partners HealthCare President and CEO
Date: Monday, March 11, 2013
“Health Information Technology and Patient-Centered Care: The Revolution”
David W. Bates, MD, MSc
Senior Vice President for Quality and Safety, Chief Quality Officer
Date: Monday, February 25, 2013